From here on out our NICU stay would be less like a roller coaster and more like a train ride, a little bumpy but for the most part pleasant. For the next 6 weeks Evie was in recovery. We weren’t able to pick her up from under her arms, she was still getting a … Continue reading A NICU Story (part 9)
A NICU Story (part 8)
Evie spent the next couple of days on life support. The doctors had decided to let Everly’s body rest and recover a bit before they attempted to remove her off of the vent again. Aaron and I sat by her bedside all day only leaving to eat. Although Evie was unconscious most of the time … Continue reading A NICU Story (part 8)
A NICU Story (part 7)
After they had rolled Evie back to surgery we and the family that came to support us and Everly went down to the cafeteria. After only an 1hr and half her doctors walked through the cafeteria doors. My heart began to pound, somethings wrong. The surgery was supposed to take 4 to 6 hours. Why … Continue reading A NICU Story (part 7)
A NICU Story (part 6)
After the pneumonia it was expected that Everly would make a full recovery but to everyone’s surprise she didn’t. For some reason she could no longer maintain her oxygen without extra support. Before Everly got sick she was on a cannula during the day and at night she was on the CPAP but after her … Continue reading A NICU Story (part 6)
A NICU Story (part 5)
Have you ever seen the light at the end of the tunnel and then watched it fade away? We arrived at the hospital, both very excited as it was the day before we were meant to go home. It was going to be a busy day. We had to meet with the companies that would … Continue reading A NICU Story (part 5)
A NICU Story (part 4)
Day in and day out it would seem like there was no change one day melting into the other. I decided that I would go see Everly Sunday through Friday and Aaron would visit every other day. For the time being this would be our new normal. Id drive 140 miles a day. Most days … Continue reading A NICU Story (part 4)
A NICU Story (part 3)
Four Days before Everly’s gtube procedure she had a hearing test done and a week after the surgery I received the results. For a couple of days the audiologist and I had been playing phone tag, with every ring I became increasingly more anxious until finally she reached me. I was at a doctor's appointment … Continue reading A NICU Story (part 3)
A NICU Story (part 2)
After finding out that Everly had CHARGE Syndrome I did what any person would do. I googled the crap out of “What is CHARGE Syndrome?” Essentially, it’s having specific medical anomalies. Each letter of CHARGE stands for something and you can be diagnosed either clinically or genetically. In Everly’s case it was genetic and she … Continue reading A NICU Story (part 2)
A NICU Story (part 1)
For most parents seeing your newborn is a matter of staring in their direction while sitting sleep deprived on the couch but for us, for 247 days we would have to drive 70 miles one way, pay a hundred dollars a month to park, walk across the street sometimes in freezing weather, show the security … Continue reading A NICU Story (part 1)
A NICU Story(Preface)
The doctors and nurses are all staring at us, Dr. Rhed “We tried to remove her off the ventilator and she went in to cardiac arrest.” Before we go there let me take you back to where it all started, this journey of heartache and love. Aaron and I had been pregnant before, two times … Continue reading A NICU Story(Preface)
Breath In, Breath Out. 