From here on out our NICU stay would be less like a roller coaster and more like a train ride, a little bumpy but for the most part pleasant. For the next 6 weeks Evie was in recovery. We weren’t able to pick her up from under her arms, she was still getting a … Continue reading A NICU Story (part 9)
Tag: special needs
A NICU Story (part 8)
Evie spent the next couple of days on life support. The doctors had decided to let Everly’s body rest and recover a bit before they attempted to remove her off of the vent again. Aaron and I sat by her bedside all day only leaving to eat. Although Evie was unconscious most of the time … Continue reading A NICU Story (part 8)
A NICU Story (part 6)
After the pneumonia it was expected that Everly would make a full recovery but to everyone’s surprise she didn’t. For some reason she could no longer maintain her oxygen without extra support. Before Everly got sick she was on a cannula during the day and at night she was on the CPAP but after her … Continue reading A NICU Story (part 6)
A NICU Story (part 5)
Have you ever seen the light at the end of the tunnel and then watched it fade away? We arrived at the hospital, both very excited as it was the day before we were meant to go home. It was going to be a busy day. We had to meet with the companies that would … Continue reading A NICU Story (part 5)
A NICU Story (part 4)
Day in and day out it would seem like there was no change one day melting into the other. I decided that I would go see Everly Sunday through Friday and Aaron would visit every other day. For the time being this would be our new normal. Id drive 140 miles a day. Most days … Continue reading A NICU Story (part 4)
A NICU Story (part 2)
After finding out that Everly had CHARGE Syndrome I did what any person would do. I googled the crap out of “What is CHARGE Syndrome?” Essentially, it’s having specific medical anomalies. Each letter of CHARGE stands for something and you can be diagnosed either clinically or genetically. In Everly’s case it was genetic and she … Continue reading A NICU Story (part 2)
Breath In, Breath Out. 