A NICU Story (part 2)

After finding out that Everly had CHARGE Syndrome I did what any person would do. I googled the crap out of “What is CHARGE Syndrome?” Essentially, it’s having specific medical anomalies. Each letter of CHARGE stands for something and you can be diagnosed either clinically or genetically. In Everly’s case it was genetic and she … Continue reading A NICU Story (part 2) →

A NICU Story (part 1)

For most parents seeing your newborn is a matter of staring in their direction while sitting sleep deprived on the couch but for us, for 247 days we would have to drive 70 miles one way, pay a hundred dollars a month to park, walk across the street sometimes in freezing weather, show the security … Continue reading A NICU Story (part 1) →